By iceicebaby - 06/12/2010 15:42 - United States
pere tells us more.
there's a few treatments that help stop the vasoconstriction, but most have side effects (of course!) so a first course of action is just to bundle up...which believe me, doesn't work nearly as optimally as it should! And yup, purple/grey feet when they warm up! Some people have really severe cases where open ulcers + gangrene can occur and yes, they really do lose fingers and toes :(
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oh that's horrible. my mom was diagnosed in 97' with that, it has now progressed into scleroderma crest- it's a terrible disease. stay warm! I know it's a difficult thing to do when you're in the Midwest. we just moved to Chicago from Alaska, for better medical treatments for my mom. the cold is a real bitch on the disease..
I have been diagnosed with raynauds also.it does suck.I've had many doctors tell me that it is very important that you never smoke when u have raynauds because it can cause you to lose fingers or toes not sure how though. Also caffeine can sometimes help trigger the raynauds to act up. Hope I helped
there's a few treatments that help stop the vasoconstriction, but most have side effects (of course!) so a first course of action is just to bundle up...which believe me, doesn't work nearly as optimally as it should! And yup, purple/grey feet when they warm up! Some people have really severe cases where open ulcers + gangrene can occur and yes, they really do lose fingers and toes :(
Well, I made an account just to post :P I've been diagnosed for several years and I live in Northern Ontario -- It can be up to -40C with the wind chill. I've been put on medication, specifically adalat, and it has proven somewhat successful. Luckily for you, there are differing degrees, mild, moderate and severe. I have the latter. It's not really something that I find overly hindering, and to an extent I find mental preparation can go a long way to preventing spasm. Trying to remain stress and doing things that increase circulation (like regular exercise) help tremendously. I didn't check your age, but often occurs in the young due to smoking ~ and has been shown to completely resolve if you quit. It's also a lot more likely if your a woman, and it's genetic and been linked to (as a precurser rather) other auto-immune diseases like rhuematoid arthritis and lupus. This disease can be debilitating for those with spasm that doesn't resolve forming ulcers and becoming gangrenous like others have said. What I didn't see mentioned (at least I don't think I did) is there is a procedure (surgery) that can be done to remove your arteries abilities to constrict in the hands in feet. It's very evasive and seldom done, not only that, the results aren't 100% good so it's not something that doctors/surgeons are wanting to do. Anyways, hope this helps. Try to stay dry and warm. Mike
that should be stress free. Spell check works, grammer check doesn't :D
Hey, thanks Mike! I really appreciate the input. Yeah, I never had the full-blown symptoms til I moved to Ohio, though I was always prone to being cold before then. It developed over my first winter here and has progressively worsened; it used to only affect my feet, but I have it in my hands now, too. I don't smoke (thankfully), and I exercise regularly, etc etc. Stress makes it worse, but it flares up almost every day while I'm working or sitting at my desk. I even invested in -40 degree snow boots, and they help, but it still happens. Again, thanks, and best of luck to you in Ontario!
gotta love ohio, it was like 13 degrees today, I was about to freeze!
I have Raynauds. It's not that bad, really.
I have Raynauds. It's not that bad, really. The colours are kind of pretty. lol. It also reacts to stress. Just soak your hands or feet in warm water when it flares up. It'll help.
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Wow. You should move to Florida or somewhere that's mainly always sunny!
I have the same problem and I also live in Ohio. I wear my coat and fingerless gloves all the time during class and when I got out. I bought a heater for my room and I have a bed warmer so I'm never cold at my house but when I go out...ugh it sucks. Just from getting in my car in the morning when its really cold within a few minutes my fingers are numb and white. I feel your pain.