Thanks guys
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I can't imagine what else they say to you when you're in pain OP. I am so very sorry. Are there any support groups your doctor can recommend? Depending on your age the ways to deal with this are very different. If you are younger and dependent on them, please call your doctor and explain what happened. The doctor is on your side and could act as an advocate for you in trying to find the support and services your family obviously isn't' going to supply. If you are older, push as far away from them as you can while you setup a life to take care of yourself. Hang in there, good luck, and stay strong.
Remember that you get to choose their nursing home.
I feel your life. I have Ehlers Danlos Syndrome type3 which is a particularly odd and painful disease. My family still doesn't understand what it actually means to my life, and many more just think it's fake.
I didnt get diagnosed with that til i was 29. All my mom had to say? "Oh that makes so much sense" every thing that happened growing up starting when i was born.
I have EDS3 as well. On the outside I look fine, but on the inside my body is in so much freaking pain. I've had so many not believe me about the pain even including doctors. Joining online support groups has helped me the most. Also researching my condition as much as possible since doctors are not usually very knowledgeable about everything concerning what I have... if they even know what it is at all. My mom has pain issues as well. Pretty sure I got this from her. So she understands. My step dad on the other hand doesn't get it. I told him I was going to have a ramp put over the stairs at my place and he said "only people in wheelchairs need ramps". I hope your parents come around. *hugs*
Are your parents actors by any chance?
So what was the diagnosis for your parents?
Oh, I really feel you. I have scoliosis, not too bad, but it still hurts. I had x—rays done and all that, and later even the doctors said that I am not in pain, they didn't believe my diagnosis after they clearly saw it on the pictures. I just... I didn't even know what to say. I have had trouble with friends too, they just don't get it. I hope you get through to your parents, though!
As someone with a chronic pain condition, I feel for you. I can't even imagine not having the support of your parents, but try to look for support from friends or other family. Try not to be discouraged. Life will be hard but it's not over. No one really will understand what you are going through unless they have a chronic condition themselves. Maybe look for a support group in your area. I will keep you in my thoughts!
When i got diagnosed with crps my mom told me it was because i gave my boyfriend a handjob (i didnt, and that isnt what caused it). It hurt emotionally, but she eventually asked for forgiveness due to seeing how much pain i was in. So **** your parents dude. Find groups online, they really help. It may seem like you are alone now, but with PROPER support, emotionally, it does get better.
Keywords
Do your parents have something wrong with them?
That's a really sick move by all of them