By LaineyLove - 09/05/2009 07:05 - United States
LaineyLove tells us more.
I'm the one who wrote the FML. I'll clear some things up for those of you who think I deserved it. The FMLs have to be short so I couldn't write the whole story. My main symptoms were severe joint and muscle pain along with cramping and headaches. The stomach pain was constant, not just when I ate bread. I had a hard time even digesting vegetables. I went to doctors practically every week and scoured the internet. I was finally "diagnosed" with fibromyalgia and IBS. My first Celiac blood test came back negative, but finally my gastroenterologist figured it out. I'm now gluten-free, and I'm feeling much better (although hungry). And I'm a pre-med student, so I'm not an idiot. I saw at least 5 different doctors and specialists. I even went to Mayo Clinic. Celiac can be a very difficult diagnosis as the symptoms are often non-specific. Thanks for all the tips on gluten-free food. It's time for me to start cooking!
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aw mannnnnnnnnnnnnnnnnnn, fml totally
#89 I know that in the UK and I think the US 1 in 100 people have coeliac.
i know it sounds like an FML but there are a lot of alternatives, its becoming more and more recognized in the medical and food community. when i first got diagnosed (i have an intolerance, i don't actually have Celiac) i was like "what the hell am i going to eat now!?" but i have learned that there is plenty out there, you just kind of have to go out of your way to find it. if you have a whole foods in your town, you are golden. They have a TON of gluten free mixes (brownies, cookies, bread) as well as pre-made baked goods in a certain freezer section. i've been gluten free for about 2 years and i feel so much more healthy, i used to wake up with headaches, be fatigued all the time and i would get sick a lot more often now all of that is gone.
oh and #81 i LOVE Amy's gluten free mac n' cheese and Glutino products, so good!
i feel real bad for 97 who beats what i'm about to say: i personally am vegetarian, plus allergic to wheat, soy, seafood, peanuts, tree nuts, corn, green peas, dairy, melon, and citrus. but eating isn't that bad for me. fortunately i know how to cook and was already familiar with the few health food stores in my area from being vegetarian, so once i was diagnosed with the new allergies (i'd always had problems with tree/peanuts and seafood) and actually ACCEPTED my condition - that was the hardest part for me - i was fine. OP, i recommend visiting a homeopathic doctor if you can budget it. i went when i found out about all the allergies and was freaked out by the idea of never eating again. she had me detox and put me on a rather satisfying diet.
Heyy, don't feel bad, I have celiac too and I've gotten used to it after a while. And yes, it can be spelled celiac OR coeliac so don't make stupid judgements (ahem #4). For all the people saying, "It's ok, you'll get skinny!" I just have to warn you that I've had it all my life so I'm really underweight and my doctor basically wants me to eat sticks of butter so I can gain weight. Sometimes celiac sucks but it'll get better. Good luck!
Oh and P.S. Kinnikinick is amazing. Their donuts are DELICIOUS but they have to be shipped in from Canada, so they cost huge amounts of $$$. Also, if you're ever in Manhattan, go to BabyCakes bakery. They make the best cupcakes and cookies that are gluten- and sugar-free and vegan. If you won't be getting to New York anytime soon, they also have a cookbook with all the recipes. Be warned: you will need 1) obscure ingredients such as flax meal and 2) serious baking skills to be able to figure out the complicated recipes.
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that does suck. but. didn't the bread just make you feel worse? and if so, why did you keep eating it each time?
Im sorry... I know what that one is like... they thought I had that too. There are plenty of support groups out there, and a lot of alternatives.. keep your head up!!!!